Therapies
Therapy can help keep and grow skills. The IRSF guide says therapy should focus on keeping and using the skills a person has.
This is not medical advice. Talk with your doctor.
Occupational therapy (OT)
OT can help with hand use, self-feeding, seating and positioning, splints, and changes at home. The Rett Syndrome Research Trust has a free OT guide for families.
Feeding and food therapy
If chewing or swallowing is hard, the IRSF guide says to see a speech or occupational therapist or a GI doctor. A swallow study can check safety if there is choking or gagging at meals.
ABA (applied behavior analysis)
The Rocky Mountain Rett Association says ABA can help manage hard behaviors and build new skills. It also says some people disagree about ABA, so it is important to find the right therapist. Ask your care team if it is a fit.